Sunday, March 31, 2013

Second beginnings, still flying blind

When our third child, a miracle baby was born in October of last year, I had already felt that she would be something extra special for our family. Beyond being a baby I thought we would be never have, something else.

This has proven true on so many levels. She has eyes that look through to your soul, and maybe give a tiny insight into hers.

I wrote the following at just after 4am in late January. Our littlest daughter was over 3 months old by this stage and we were well into our journey. So I thought then anyway.

I have always felt like L was sent to us to teach us something. A special little soul. I think the events of the last three months, culminating in a chat with a dietitian have made me realise the beginning of that lesson has already begun. 

She has taught me patience, unconditional love that only a sick infant can need. She has taught me to trust my instincts and to never give up asking questions. To never presume one answer to a question is correct and sufficient when talking on a difficult
topic. 


To sit back and smell the roses. 

To enjoy the good days as you don't know when they will next be here. 


Another couple of months on, the journey has only gotten harder, but these words are so accurate and I think will be accurate for a long time to come.

You have to trust your gut that something isn't right. That nobody else can see, but you know it's there. 

Lets see where this long road takes us. 

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